David Alexanderian
Global Clinical Development Le...
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Alix Alderman
VP Head of Regulatory Affairs ...
PellePharm
Daniel Anderson
Head Commercial Partnerships
Invitae
Sonali Chopra
Director Alliance & Advocacy R...
Genentech
Allyson Damikolas
Mother & Carer
Rare Disease Patient
Khrystal K. Davis
CEO and Patient Advocate
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Rachelle Dixon
President / Co-Founder
HSAN1E Society
Carl K Edwards
Chief Scientific Officer
DNX Biopharmaceuticals
Clasina Field
Co-Executive Director
Bens Friends
Jacob Fraker
Legislative Associate
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Bruno Gagnon
Senior Vice President, Develop...
Eidos Therapeutics Inc.
Todd Galles
Business Development Principal
Durbin
Femida Gwadry‐Sridhar
Founder and CEO
Pulse Infoframe Inc.
Fred Holdbrook
Director of Biostatistics
Amicus Therapeutics
T Anthony Howell
Co-Founder & Digital Community...
rareLife solutions
Lucas Kempf
Medical Officer for the Rare D...
FDA
Tom Lambdin
Co-Executive Director
Ben’s Friends
David Y. Liu
Chief Scientific Officer, Head...
Protagonist Inc
Qing Liu
Founder & Principal Consultant
QRMedSci
Serge Messerlian
President
Actelion Pharmaceuticals US, Inc
Debra Miller
CEO
CureDuchenne
Eric M. Mueller
Associate Director, Cell Thera...
Orchard Therapeutics
Angela Ramirez Holmes
Founder/President
Cal Rare
Harsha Karur Rajasimha
Co-Founder, Board Director
George Mason University, Fairfax, VA
Javier San Martin
Vice President Clinical Develo...
Ultragenyx
Vij Senthilnathan
Senior Clinical Study Manager
BioElectron Technology Corporation
James P. Shaffer
MBA, Chief Business Officer
Eiger BioPharmaceuticals
Mridula Shukla
Global Program Lead, Regulator...
Adverum Biotechnologies, Inc.
Katherine Stueland
Chief Commercial Officer
Invitae
Michael A. Swit
FDA Legal Counsel
Law Offices of Michael A. Swit
Christine Von Raesfeld
Patient Advocate, More Than Lu...
PatientsLikeMe
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