Rachelle Dixon

President / Co-Founder

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Rachelle Dixon grew up in the shadow of rare disease. She was born into a family affected by a rare disease, HSAN1E. As an adult, Rachelle was the caregiver for her older brother, and sister. In 2015, Rachelle lost her sister to HSAN1E, and eleven months later she lost her brother to the disease as well.


Rachelle, along with other members of her family formed the HSAN1E Society. HSAN1E Society is a nonprofit organization, that’s mission is to raise awareness for HSAN1E and help provide support for other families that are affected by this horrible disease.